Corrective Truth
Most lipedema misinformation doesn't live in a doctor's office. It lives in the offhand comment nobody pushed back on, the post that went unchallenged, the intake form nobody corrected. The tools in this node are built around one premise: Correction is a skill, and the more people who practice it, the sooner recognition finds the people who need it.
Correct Four
This tool is for people with lipedema and the people in their lives. Lipedema takes an average of 17 years to diagnose. We think bias and misinformation in everyday moments are part of the reason for this. Connect four in a row. You can print this image or screenshot your results. Post it and tag us at @connectivetruth, or email us your card at truth@mooregood.org.
COMING SOON!
Revised BMI Chart
Take my height in inches. Multiply that by the years I’ve lived undiagnosed with lipedema and raise it to the power of my pain and exhaustion. Add the liters of fibrosis and inches of circumferential swelling. Run a factor analysis on the derivative of bad advice from doctors to exercise more and eat less. Divide by the number of providers in the room who know what lipedema is. Subtract the grief of being told it's your fault for a decade. Take the square root of 400 million women living with this condition.
Then, take the number on the scale and forget it because tools like scales are only as good as the people who understand what they are measuring.
That's my BMI.
Corrective Truth Contest
A cash prize contest from Connective Truth
Bias and misinformation don't just live in a misdiagnosis. It lives in an offhand comment nobody pushed back on, a post that went unchallenged. It lives in waiting rooms, on playgrounds, in the checkout line at the grocery store, and it lives in the curious stares of strangers at the beach.