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ABOUT

Our Mission

Connective Truth is an education and advocacy initiative under the Moore Family Charitable Foundation that disrupts the biases and narratives blocking lipedema recognition and integration wherever they appear, working upstream and in the immediate aftermath of recognition to build the path that delivers the word to the communities where it would not otherwise reach, and the tools to make sense of it when it does.

ABOUT

Our Mission

Connective Truth is an education and advocacy initiative under the Moore Family Charitable Foundation that disrupts the biases and narratives blocking lipedema recognition and integration wherever they appear, working upstream and in the immediate aftermath of recognition to build the path that delivers the word to the communities where it would not otherwise reach, and the tools to make sense of it when it does.

Lipedema is not rare. It affects an estimated 400 million women worldwide. Most women don’t realize they have it.
Lipedema is not rare. It affects an estimated 400 million women worldwide. Most women don’t realize they have it.
In addition to being a progressive disorder that gets worse without care, the mental health consequences of not knowing reach into all aspects of a woman’s life.
In addition to being a progressive disorder that gets worse without care, the mental health consequences of not knowing reach into all aspects of a woman’s life.
Approximately 40% of lipedema patients report depression and roughly 16% report eating disorders.
Approximately 40% of lipedema patients report depression and roughly 16% report eating disorders.

Most lipedema organizations serve women who already have the diagnosis. Connective Truth works before that. In schools, clinics, boarding gates, and locker rooms, we disrupt the biases and cultural narratives that block recognition in the first place. The years between onset and recognition are not just a delay in care, they are the damage.

We build the path that delivers the word to the people and systems around young women before that damage compounds, with priority on the communities where it would not otherwise reach.

And for the woman who just got the word, we build what comes next: the tools to dismantle the wrong story and reorient in a world that handed her the wrong explanation for decades.

Our Vision

The Connective Truth

Why it Gets Missed

Our Vision

The Connective Truth

Why it Gets Missed

Core Anchors

How does it all connect?

What's the defining moment behind this focus?

Why avoid the word “awareness”?

You call the delay the injury. What do you mean?

Why is it hardest for girls, rather than grown women?

What messages delay recognition?

What is Connective Truth doing differently?

What's the biggest misconception about lipedema?

Connective Truth provides education and advocacy support and does not offer medical diagnosis or treatment.

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